ello to all Our Friends . We had a bit of a set back today , I'm sorry to say . We were re-admitted to the Hospital to begin Billy's Chemotherapy , and had a conference with Billy's Oncologist . He informed us , as Billy listened , that he is almost certain that Billy's cancer had Metastasized .
What is Matastasis ?
It refers to the Spread of a tumor from it's original location to other parts of the body . Because Ewings tumor often is not diagnosed quickly , matastasis is found in approx. 30 % of patients at initial diagnosis . Half are found in the lungs , and half in other places , most often the bones . Which accounts for the other tumor found above Billy's knee . The Dr. also said this could be a " skip leision " , but is as rare as Billy's cancer . Therefore , the Dr.s have informed us that they are treating this as if it has spread and are going to take a more aggressive approach . The Dr.s are really baffled as to how this tumor is presenting itself . It is certainly rare for a Ewings tumor to act like this . Billy will be given a greater amount of chemotherapy drugs to ensure that any cancer cells outside the main tumors will be killed . Billy was a bit upset as we listened to what the Dr. had to say , but agreed with the protocol and said , " Just Kill it ". I ran home to get this posted for you to see , I know you were all concerned as well . Billy is in Room 261 , and should be in the Hospital for at least 7 days for this treatment .
Well , let me go for now . I have a bit of a headache and i have to get back to the Hospital *wink* . Oh , Billy has a roommate ! Another Boy his age . I'm not sure what form of cancer he has , but I heard it was lukemia . Have a great night , until next time .

Please forgive me if I ramble a bit . Billy started his Chemotherapy this morning . As I stated yesterday , he is getting a very Aggressive treatment , and we had a bit of a scare this afternoon . The nurses were administering one of the drugs , and had to watch Billy for an adverse reaction to this particular drug . As luck would have it , Billy certainly had a allergic reaction to it . The nurse was quick to act and gave Billy something to counter-act the drug . Billy couldn't breath and scared the heck out of me *wink* . Alicia was out of the room at the time , otherwise she would have " freaked out ". Billy slept for sometime after this ordeal , and when he woke up it was dinner time and he ate like a horse ! This is a good thing !
The school administrator met with Alicia and I today . Billy's schooling is being so that he won't loose any time , or the 5th grade . He will be schooled at home and or at the Hospital . This was a major concern for us , and seems to be one of this Hospitals highest priorities . They are truly seeing to it that we are shown the comfort and compassion needed to overcome the obstacles which lie ahead . It is a very somber sight here at All Childrens Hospital on the Oncology floor for Children . There is so very much pain and suffering , and these little people ( Our kids ) are all " Champions " in their own right . They are so very Brave , and at times oblivious to what is going on to , and around them . I'll look in amazement as I see an 8 year old " Bald " child walk down the hall with a smile from ear to ear . They are so very brave , and just for that reason should be allowed to LIVE . Good night .

Welcome back *wink* . Billy is on his second day of five for this treatment of chemotherapy . He got sick a few times last night , but held his own today . He was in very good spirits and was awake most of the day after waking up around 10 am . Below is what happened when he is given one of the many drugs for his treatment ! Notice all the IV lines that are attached to him . There are 5 pumps feeding 2 IV's . Also notice his stuffed Dalmation under his arm ! That is his Buddy " Sparky " , whom he's had for quite a few years now . It is his security blanket . That Black looking thing on the rail of his bed is a stuffed lemur ! It was given to Billy by Father M. from St. Pauls Church . He came today to anoint Billy , and give him Communion . Billy was very happy to see him , as was I . I had also asked the Web masterarranged at the American Cancer Society If I could add a link on Billy's Page to their very informative Website and was given permission . Here is a quick link to their Page on Ewings Sarcomas. Please visit this Website and learn how you can help the cause . Alicia managed to get home this morning and grab a few hours of sleep after spending the night in the Hospital . She is able to sleep , but Billy is tended to every hour or so and it is really difficult to sleep , as some of you know ! I spent all day with Billy , and ran home to update you all , and cut the lawn before the sun went down ! I managed to get it done and a few other chores .
Tomorrow will be the 3rd day of Billys Chemotherapy , and the day when he should start feeling pretty lousy . His hair should start to thin as well . YES........he likes Hats ! ( hint ) ! Oh , before I forget , Billy's room mate dosn't have lukemia , he has Osteosarcoma ; the other Bone cancer . he has already been through the process a couple years ago but his cancer re-appeared in his lungs . He too , is such a Brave boy . Include him in your Prayers if you'd be so kind . Well , I'd better tend to my e-mail . I have 106 yet to look at and or reply to . Billy will get a chance to review the e-mails as well when he is released next Thurs .( we hope ) . Billy's email address is : wacki92@aol.com if you'd like to e-mail him directly instead of through me . Well , please check back tomorrow and continue your Journey with Billy . Good night .

First of all I would like to say that this Website is Reality and is presented as such . No beating around the bush , this is the way it is . I just want to get that point across to those who may take offense to any part of this Website . As stated in the opening statement on page 1 , you are in no way forced to read any part of this Website . I am doing this as an outlet of sorts , and as a way for Friends and Family to keep up to date on the Progress of Our Son ; Good and or Bad . With that said here is some good ! Here's a Photo of Billy having some lunch today . He woke up after one of his treatments , with a hunger that wouldn't quit ! He did pretty good too . As expected , he started to feel some of the side effects of the Chemotherapy . His jaw started to hurt , and tounge and lips were beginning to get sore . As of 7:30 pm he was in good spirits , although noticably affected by the Chemo . Alicia managed to get some much needed rest at home this afternoon as well . Her Brother Juan is coming up from Miami tomorrow to spend the weekend with us and Billy . Billy is really looking forward to his arrival , so is Alicia and I , *wink* ! Alicia's Mom ( Billy's Ama ) is coming down from Jersey on Sunday as well . Yes , Billy is anxiously waiting for her too ! as are we ! Well , I'm gonna see if I can get to sleep early , I'm kinda beat *wink* . I hope you all have a good night , and i'll see you back here tomorrow ; OK.....ok !

Hello , I hope this entry finds you all in good Spirits . Billy had a day pretty much as expected , he got sick a few times . Sorry , for those of you who visited Billy today *wink* . Here are a couple of Billy's Buddy's Johnathon and Andreas . They came up this afternoon , and brought Billy some Play Station games ! Did I tell 'ya that Billy brought his Play Station to the Hospital ? Well , he did , and they hooked it up for him so he could play while he is there . They really make the kids feel at home . Billy's appetite is pretty much gone , but he knows he must eat in order to maintain his strength . His Jaw is really bothering him as well . They've given him a pain killer for the pain . Tomorrow is the 5th and final day of this Chemotherapy session . Billy will be able to go home probably on tuesday , depending on how he feels . The Dr. advised us that he most likely will get a fever of at least 101 . If it should be higher , we will have to re-admit Billy to the Hospital . This too is expected to happen . Billy's blood count will be monitored to rule out infection of any type . All in All every thing is going as expected , and the fact that Billy knows what to expect makes it alot easier on him too . I noticed a few hairs on his pillow today , I guess his hair is starting to thin out . I plan to cut off my hair as well to possibly make Billy more at ease with his baldness . What the heck , right !! Billy also had his blood type drawn up for when he undergoes surgery . He may need a blood transfusion , and our friends are already lining up to donate . I may be a bone marrow donor for him , so they can't use my blood for fear of his body rejecting the bone marrow .
Alicia was called upon last night and today to translate for a Spanish couple who's daughter is in the room next to Billy's . She wasn't given a very good prognosis , and I commend Alicia for helping the parents in their time of need . It must have been a terrible thing to have to help someone through especially having your Son in the very next room . Thats why I Love her so very much , She is always thinking of others . I love you Billy's Mommy , with all my heart . Good Night .