"If you fill your heart with regrets of yesterday and the worries of tomorrow, you have no today to be thankful for."



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bpbullit Fri. 9 Apr. 2004 partly sunny 81°   727-898-7451 Room # 273 A
Welcome back to Billy's Page. Today is Day +36 on Billy's BMT calendar. Todays counts are: WBC @ 3.66, RBC @ 3.21, Hemoglobin @ 10.1, platelets @ 54,000. ANC @ 2585. Being that this is a new page, I'll point out the "NORMAL" blood count levels, which are:
WBC: 4.0 - 10.5
RBC: 4.20 - 5.60
Hemoglobin: 12.5 - 16.1
Platelets: 150.000 - 450.000
Dr. Petrovic confirmed today, with the results from the skin biopsy, that Billy does in fact, have GVHD, and will be treated for it. Billy will have a colonoscopy and biopsy within the next few days to see if the GVHD has affected his gut. Dr. Petrovic would rather there be "no sign" of this disease, but some experts say that a mild case of GVHD can be a good thing for Billy's new immune system to attack, and conquer. As always, we will put our faith and trust in the hands of Our Experts.
Billy, as you can pretty much imagine, is bored out of his mind. He was so excited to be going home, that this unexpected turn pretty much took the "wind out of his sails". I took a photo of Billy today so that you can see what the GVHD has done to Billy's face. This very visible, itchy rash, is all over Billy's face, arms, abdomen, and legs. Click the camera below to see*wink*.
 Click here, to see Billy's Face*wink*
Please Pray for Billy.........................
bpbullit Sat. 10 Apr. 2004 partly sunny 83°
{8:30pm} Welcome back to Billy's Page. Today is Day +37 on Billy's BMT calendar. Todays counts are: WBC @ 4.69, RBC @ 3.19, Hemoglobin @ 10.2, platelets @ 60,000. ANC @ 3260. Billy's counts are still on the rise, or stable. Billy's platelets are up another 6,000, which is wonderful to see.
Billy had a fairly good night last night, besides some bouts with "itchy skin". Billy ate some baked fish, and had some of Alicia's soup as well. Billy is showing some sign's of "worry", although he is not speaking his mind. We won't push the issue, we'll just sit tight, and hope that he comes around. The past few days have been pretty tough on us all, Billy in particular. Billy was up when I arrived this morning, and was complaining(silently) of the uncontrollable itching. We asked the Nurse to give Billy some benadryl, she did, and Billy felt much better, and fell asleep. Billy slept until about 2:00 this afternoon, at which time he woke, had some lunch, and went back to sleep. He is better off sleeping through the "lousy" feeling's all these drugs, and the itching put's him through. Alicia arrived, walked me to the elevator, we gave each other a kiss, and looked at each other as the elevator doors closed on another day in the Life of a bone marrow transplant patient. Billy is showing signs of Clostridium difficile, and is being treated with flagyl, This medicine is an anti-infective used to treat infections. Some of the other med's Billy is taking at this time are:
Acyclovir:
Acyclovir is an antiviral treatment used to deal with shingles, chickenpox, or genital herpes. It may also be used to treat other conditions.
Doxycycline:
Doxycycline is a tetracyline antibiotic that kills certain bacteria that cause infection or stops their growth. Itís used to treat many kinds of infections of the skin, bone, stomach, respiratory tract, sinuses, ear and urinary tract. Doxycycline also treats Lyme disease, all forms of Anthrax and certain sexually transmitted diseases. For those who travel to certain parts of the world where malaria is prevalent, doxycyline can be given to suppress the disease. Doxycycline is the preferred medication for elderly patients exposed to all forms of Anthrax.
Diflucan:
This medication is an antifungal agent used to treat infections in certain areas of the body caused by yeast and yeast-like organisms.
Cefepime:
Cephalosporins (sef-a-loe-SPOR-ins) are used in the treatment of infections caused by bacteria. They work by killing bacteria or preventing their growth.
Cyclosporine:
Cyclosporine also is used to prevent rejection problems in bone marrow and other transplants. It also may be used to treat rheumatoid arthritis and other conditions that have not responded to other medicines.
Zofran:
ZOFRAN is indicated for prevention of postoperative nausea and vomiting (PONV), cancer chemotherapy-induced nausea and vomiting (CINV), and radiotherapy-induced nausea and vomiting (RINV).
Solumedrol:
Solumedrol or methylprednisolone is used in the treatment of various diseases. For example, allergic reactions, asthma, Collagen vascular diseases (lupus, etc.), Gastrointestinal diseases (Ulcerative Colitis and Chron's Disease), and various lung diseases etc.
Alicia called and told me that Dr. Petrovic came in and sat with them for a while, and talked to Billy about how well he was doing, Billy was very receptive. She is going to be cutting the dosage of Doxycycline that Billy is getting to see if it has anything to do with the severity of the rash Billy has had. She is also very, very impressed at the way Billy's body is producing it's own "HEALTHY" blood cells. The results of the cytogenetics on Billy's bone marrow show no sign's of the chromosome abnormality that led to Billy's diagnosis of MDS. The trans-located #1 and # 21 chromosome's have been corrected by the BMT.
Thank you to Judy and Brionna from Mentor, OH., Billy received your card today*wink*.
Please Pray for Billy.........................
bpbullit Easter Sunday , Sun. 11 Apr. 2004 partly sunny 83°
{8:30pm} Welcome back to Billy's Page. Today is Day +38 on Billy's BMT calendar. Todays counts are: WBC @ 6.67, RBC @ 2.74, Hemoglobin @ 8.8, platelets @ 66,000. ANC @ 2245.
On behalf of Billy, and My Family, I would like to say "Happy Easter" to all of Billy's Friends from around the World. We hope this days finds you all surrounded by those you Love. Billy had a wonderful day today, and felt very good. As you can see, Billy's platelets are up another 6,000, and his WBC are also up quite a bit. RBC and Hemoglobin are down somewhat, but not to worry*wink*. Alicia Surprised Billy this evening, when she came back to the Hospital with one of Billy's "favorite" homemade dishes, Lazagna!! Billy was almost in tears as Mom walked in and Billy couldn't help but smell what was in the bag Mom carried!! Although the photo isn't all that good, it speaks volumes! Click on the camera below to see Billy's as he enjoy's his Easter Dinner!
 Click here, to see the look on Billy's Face*wink*!
Please Pray for Billy.........................
bpbullit Mon. 12 Apr. 2004 partly sunny 80°
{7:30pm} Welcome back to Billy's Page. Today is Day +39 on Billy's BMT calendar. Todays counts are: WBC @ 6.52, RBC @ 3.18, Hemoglobin @ 10.6, platelets @ 68,000. ANC @ 5802. What about them counts, huh!! Billy had a "fairly" good day today. He did have a bout with some vomiting this afternoon, not because he felt bad, but because his IV flush was pushed a bit too fast. He had just taken his meds about an hour before, so he was OK in that case. If Billy would have vomited within 30 mins. of taking his meds, he would have to take them again, *wink*. Billy's temp's have been normal over the past few days, and his "rash" has toned down some. Billy ate well today, and will even give Mom's Lazagna another try for Dinner (me too). If it weren't for the "carbs", I'd eat it everyday!! Dr. Petrovic is so happy with Billy's positive response, and the fact that his GVHD seems to have "quieted down" some, she may let us go "HOME" again on Thursday, Yes.......this Thursday*wink*. Although Billy's condition can change at any time, Dr. Petrovic has great confidence in Billy's progress, to let him taste the home life once again. Billy refuses to "get his hopes up", only to have them yanked out from under him once again. He said, "if we go home Thursday fine, if not, oh well". He knows he is in the best place if something goes wrong, and will gladly stay if need be. After 19 months in and out of the Hospital, what's another day. What's another day? Billy has spent 6 months out of the past 19 months, in the Hospital. That's no record, but it is 6 WHOLE MONTHS in a Hospital bed. I don't think I could do it, and wouldn't want to even try*wink*.
Billy has been doing very well by taking all of his meds by mouth, except for his solumedrol. He has been getting IV solumedrol, but starting with tomorrow evening's dose, it will be by mouth as well. We hope Billy won't need IV meds while at home, hooked up to a pump. Billy gets his meds at 10am, and 10pm, or there abouts*wink*. This would be great, if we could keep this schedule at home as well, without "the pump".

Click to see The Diva's Birthday site for Billy!!, Thanks Ladies*wink*!!
Please Pray for Billy.........................
bpbullit Tue. 13 Apr. 2004 partly sunny 80°
{7:30pm} Welcome back to Billy's Page. Today is Day +40 on Billy's BMT calendar. Todays counts are: WBC @ 9.43, RBC @ 3.26, Hemoglobin @ 10.6, platelets @ 72,000. ANC @ 6542. Once again, I must ask you, "How 'bout those counts"?! Billy's counts are up again, all across the board, his platelets are up another 4,000 as you can see. Billy's WBC are at the top of the Normal range, and without fever*wink*. The blood cultures that were done when Billy was re-admitted came back today, and there has been "NO GROWTH" over the past 5 days.

I would like to mention, that I was visited today, by the Father of a 19 month old 'lil girl named Hannah, from Tampa, Florida(across the Bay from us in St. Pete.) Hannah's Father(who's name I will withhold until permission is given to use it) presented Billy , who was asleep, with a UF Gators hat! For those of you unfamiliar with Florida College Football teams, I am talking about the University of Florida Gators, one of Billy's Favorites! I don't mention this because he presented Billy with a gift, I mention this because his Daughter, his very young Daughter, is also a newly diagnosed cancer patient, and yet he still takes the time to reach out to an unknown Child, Billy, and let him know that he is thought of, cared for, and prayed for. Hannah's father found Billy's website, and wanted to meet with me for a some insight as to what may lay ahead. This young Man was well versed in medical knowledge, but wanted to talk to some one in "the same boat" so to speak. Does this sound familiar? It should, there are alot of Parents out there, in the very same situation we find ourselves in. They all need your support, thoughts, and Prayers, and anything else you may have to offer to ease the pain they feel. I know I can count on all of you to hold this Child in your Hearts, as she begins a "Journey" of her own, not on her own.
 Click here, Billy and Breakfast*wink*!
Please Pray for Billy.........................and, Hannah Elizabeth.

"SURPRISE"....Ama and Apa are in town to spend a day or so with Billy, Alicia, and I before they head back to NJ, from Miami! Apa promised Billy a Chess Match when next they met!! Good luck Apa*wink*.

Thank you Judy and your daughter Brionna, for the beautiful poem below.

With hugzzzzzzzzzzz and lots of prayers for Billy. I was inspired to write this for Billy. From Judy and Brionna from Ohio.

Dear God you took his little hand,
You led him through the toughest land,
You gave him strength were we would have been weak
You gave him the courage to deal with disease
You sent a miracle for all to see
You watched over him so lovingly
You stood back and listened to prayers
From strangers and friends that traveled there
You watched as Faith took over fear
You surrounded them with love so dear
You watched him heal from the inside out
You sent him home, causing some to shout
We thank you Lord for all you've done
We thank you for Billy's battle won.
We ask you stay there by his side
We ask you to watch over this young life
We ask you to continue to be there
We ask you to accept this as our prayer.
In Jesus name we pray, Amen..... 4/7/2004
Please click on "Next Page" below, to continue your Journey with Billy! See 'ya on Page # 47!


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