"If you fill your heart with regrets of yesterday and the worries of tomorrow, you have no today to be thankful for."



Welcome back to Billy's Page #54 There have beenvisits to this page !

bpbullit Thur. 17 June 2004 sunny 91 / St. Pete. Beach (Gulf of Mexico) water temp.88
{7:30pm}Welcome back to Billy's Page. Today is Day +105 on Billy's BMT calendar. Today's counts are: WBC @ 3.10, RBC @ 2.71, Hemoglobin @ 9.9, platelets @ 23,000. ANC @ 2,000.
Once again, here are what the Normal blood counts levels are:
WBC: 4.0 - 10.5
RBC: 4.20 - 5.60
Hemoglobin: 12.5 - 16.1
Platelets: 150.000 - 450.000
It is with a heavy heart that I (we) update Billy's Page this evening. While Billy was at ACH this morning to have his IVIG treatment we learned that Our Friend Donovan, an 11 year old Boy who had a bone marrow transplant a few weeks before Billy had his, had passed away this morning at 9:00am at ACH from complications due to his bone marrow transplant. What makes Donovan's passing more troubling than it really is, is that Donovan had an almost perfect match for his transplant, and at the last minute, the Donor had changed his mind, and refused to go through with the process, and Donovan's next hope was a match that was far from perfect. Please don't get me wrong, these wonderful people who agree to undergo this, somewhat painful process of donating bone marrow, are saving the lives of alot of needy individuale's, who without them, would surely die. What I am trying to say is, PLEASE.......if you are on the bone marrow donor registry because you were interested in being a "possible" donor for some one you know, and no longer are willing to donate, please remove yourself from the registry so that another Child, or adult for that matter, will not have to have their hopes crushed. It would truly be a wonderful thing if you would agree to remain on the registry though. We have been witness to too many deaths (8) since Billy was diagnosed with cancer, and receiving treatment at ACH, and with each one it just gets harder and harder to bear. Is my Child next? This is what we are not wanting to ask our selves, but is a very real possibility. We are just devastated by this news, and Billy was truly caught off guard when we told him of the news when he returned from the Clinic. Billy is well aware of his situation, and knows things would truly have been different in Donovans case, if his original donor had gone through with the donation.
Please pray for the Soul of Donovan, and also his Parents, who never left his side. He will be truly missed by all he touched. Sleep well Donovan.

Please Pray for Billy.........................and ALL children of cancer.
bpbullit Fri. 18 June 2004 sunny 92 / St. Pete. Beach (Gulf of Mexico) water temp.89
{5:00pm}Welcome back to Billy's Page. Today is Day +106 on Billy's BMT calendar. Today's counts are: WBC @ 2.80, RBC @ 2.81, Hemoglobin @ 10.3, platelets @ 22,000. ANC @ 1,900.
Yes, Billy visited the Clinic early this afternoon. He was having some chest pains, and discomfort; so we took him to get examined. Billy had his counts checked, a chest x-ray, EKG, and an echo cardiogram done so we can see if there is anything going on. Dr. Petrovic will get in touch with us this evening with the results of the tests.

It is now 8:45pm, and we haven't heard from Dr. Petrovic yet. Unless we hear from her tonight, I'll update you tomorrow with the test results, that is, if we get them *wink*.

Please Pray for Billy.........................and ALL children of cancer.
bpbullit Sat. 19 June 2004 sunny 92 / St. Pete. Beach (Gulf of Mexico) water temp.89
{8:00pm}Welcome back to Billy's Page. Today is Day +107 on Billy's BMT calendar.
We still haven't heard from Dr. Petrovic, we can only imagine what she is going through with the loss of Donovan on Thursday morning. I'm sure if there were anything seriously wrong with Billy's tests, we'd have heard about it by now, right? Right.
We did get an e-mail today from Diva Vickey, and in the e-mail was a link to a wonderful Poem she had written for Billy the other evening. You can CLICK HERE to visit the page that contains the Poem. Thank you so much Vickey, it is a touching piece.

The following verse was sent to me by a dear Friend, the Author is unknown, but I can surely relate to it:
I was looking for a Father's Day card among the dozens and dozens everywhere.
So many perfect sentiments, for typical father's without a care.
"I love you dad!" - "You're the greatest!" - "Sit down, relax and play!" "Do all the things that you love to do on this your special day!"
"Yeah right, he wishes," I chuckled. But real dads, where are the cards for them?
The dad's who have "special needs" sons who've truly made them men.
The dad's who gave up fishing, and now only dream of a game of golf.
The dad's whose son's are in the hospital, because of pneumonia from a cough.
So many things about life they don't get those typical dad's without a clue.
About what it's like to have a disabled son, who might not ever tie his own shoe.
About what it's like at the office, hearing others brag about their kids triple-play.
Knowing if he tried to tell them, they would stare blankly and not know what to say.
So many kids choosing cards that proclaim, "Daddy, you're my hero!"
But what truly makes them a hero, those buying the card do not fully know.
Heroes are dad's accepting that their child, might not ever be a little-league champ.
Who now cheer them on at therapy, instead of going with them to Boy Scout Camp.
Heroes are men who work hard day and night, and yet find they are always broke,
Because of expenses, equipment, & challenges of a never-ending financial yoke.
They are the men who would give their life, for a treatment that would cure their son.
They are the men who understand the victory, in each tiny battle their child has won.
I give up, and am too tired to keep looking, for that elusive 'special' father's day card.
I have to laugh at the irony that this too is something else that has to be hard!
So instead I'll write down on a piece of paper, "I love you with all of my might!"
From your son who knows you're a hero, the one who hears you pray for him every night.
Please Pray for Billy.........................and ALL children of cancer.
bpbullit Mon. 21 June 2004 sunny 91 / St. Pete. Beach (Gulf of Mexico) water temp.88
{12:30pm}Welcome back to Billy's Page. Today is Day +109 on Billy's BMT calendar. Today's counts are: WBC @ 3.30, RBC @ 2.83, Hemoglobin @ 10.5, platelets @ 21,000. ANC @ 2,000.
Just back from the Hospital (Clinic), and we are just so very relieved to say that ALL of the tests done last Wednesday (EKG, EEG, x-rays) have all come back "NORMAL", and there are no signs of anything being "out of place", so to speak. Billy's counts have held pretty much stable since his last visit on Friday, and have even come up somewhat. Dr. Petrovic is very pleased at what she is seeing in Billy's progress, and that is what we hope for. Billy is feeling very good, eating well, and is starting to show some signs that the effects of the Prednisone (steroid) is slowly reversing the "puffiness" that has been so evident for the past few months. Billy's dosage of this drug is now down to 5mg x 4 times per day, from a high of 22mg x 4 times per day when he first started taking it.

Please Pray for Billy.........................and ALL children of cancer.
bpbullit Thur. 24 June 2004 sunny 93 / St. Pete. Beach (Gulf of Mexico) water temp.89
{11:00am}Welcome back to Billy's Page. Today is Day +112 on Billy's BMT calendar. Today's counts are: WBC @ 2.60, RBC @ 2.65, Hemoglobin @ 9.9, platelets @ 24,000. ANC @ 1,500.
Just back from the Hospital (clinic). Billy's platelets are up 3,000 from Monday's counts, and all other counts are pretty much stable. Billy is feeling pretty good, and his "food craving" is beginning to diminish as his Prednisone (steroid) level is slowly reduced. Saturday will see the amount reduced again, it will be at 4mg x 4 times per day.

I got Alicia to the Airport on time this morning (6:00am), for her trip up to New Jersey for Her Sister Ana's baby shower. It will be nice for them to be able to spend some time together, it's been a long time. Ana was a great help to Alicia when she was pregnant with Billy *wink*. Alicia will spend about a week or so with her Family in N.J., which is also a much needed break that she deserves.

Please Pray for Billy.........................and ALL children of cancer.
bpbullit Sat. 26 June 2004 sunny 93 / St. Pete. Beach (Gulf of Mexico) water temp.90
{1:00pm}Welcome back to Billy's Page. Today is Day +114 on Billy's BMT calendar.
All is well here in Paradise *wink*. Billy is feeling pretty good, although he miss's his Mom terribly (me too)!! Billy figured he's pass some time away by building a puzzle, consisting of 750 pieces. He hoped to have it done by the time Alicia got home next Wednesday; He finished it in 2 1/2 days..........about 12 total hours!! Go Figure!! It is a 24" round puzzle of an under water scene, fish and all!! Very colorful, and different.

Thank You Gail L., from Alabama, Billy received your Beautiful card today!

Please Pray for Billy.........................and ALL children of cancer.
bpbullit Mon. 28 June 2004 sunny 93 / St. Pete. Beach (Gulf of Mexico) water temp.90
{11:30am}Welcome back to Billy's Page. Today is Day +116 on Billy's BMT calendar. Today's counts are: WBC @ 3.10, RBC @ 2.64, Hemoglobin @ 9.8, platelets @ 26,000. ANC @ 1,900.
This morning's visit to the Clinic, was once again, uneventful. Billy's platelets are up another 2,000 from Thursdays counts, but the red blood, ANC, and hemoglobin counts are down yet again. Dr. Petrovic is very Pleased at what she see's, and has no immediate concerns other than keeping up on the fluid intake. Billy is eating very well, and has had no bouts with nausea for as long as I can remember. He is feeling great, and wants me to pass on his "Thanks" to everyone, once again, for all the support, thoughts, and Prayers that continue to flow his way.

Please Pray for Billy.........................and ALL children of cancer.
bpbullit Wed. 30 June 2004 sunny 92 / St. Pete. Beach (Gulf of Mexico) water temp.90
{2:30pm}Welcome back to Billy's Page. Today is Day +118 on Billy's BMT calendar.
All is well here in St. Pete.! Billy is feeling pretty good, and we picked up Alicia at the airport at 11:00 this morning. Billy was so glad to see her, as was I; and we are happy to have her back Home!
Billy's next visit to the Clinic is tomorrow morning at 8:00, at which time we will have some updates as to his CBC's. Tomorrow will also see yet another reduction in the amount of Prednisone (steroid's) Billy is taking. He is now at 4mg x 4 times per day, tomorrow he will be at 4mg x 3 times per day for the next 5 days, then to 4mg x 2 times per day for 5 days, then finish off at 4mg once a day in about 2 weeks. So, Billy should be off the steroids in about 3 weeks!! This is a great milestone in the bone marrow transplant process, and one less medication Billy needs to take *wink*.

Please Pray for Billy.........................and ALL children of cancer.
Please click on "next page" below to continue your Journey with Billy. See 'ya on page #55!


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